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RobinGFellow

534d

how long does it take to get a diagnosis for POTs? my friends, fiance, and I are fairly certain I have it or something similar because I have all of the symptoms, my blood tests came up clear for other conditions (such as diabetes, low vitamin b, etc), and after seeing a cardiologist my heart is "normal" aside from the Tachycardia. but I don't have an appointment with a specialist until December and I'm worried I'll have to keep jumping through hoops even after that. I just want a clear answer to what's wrong with me that way I can start trying to live normally again- as close as I can get, at least.

Top reply
    • SmileySnail

      529d

      Years. It's been years and I'm still not totally there yet. But unfortunately that's how it is with a lot of invisible or not-understood illnesses, as much as I wish I could say it's not. Doctors are trained by the motto "if you hear hoofbeats, think horses not zebras" which is great except for those of us who have "zebra" conditions, and anxiety etc have a lot of similar symptoms to POTS, so I can see how it would make sense for docs to pursue treatment for simpler, more common illnesses first. Still really really sucks though

    • SmileySnail

      529d

      Years. It's been years and I'm still not totally there yet. But unfortunately that's how it is with a lot of invisible or not-understood illnesses, as much as I wish I could say it's not. Doctors are trained by the motto "if you hear hoofbeats, think horses not zebras" which is great except for those of us who have "zebra" conditions, and anxiety etc have a lot of similar symptoms to POTS, so I can see how it would make sense for docs to pursue treatment for simpler, more common illnesses first. Still really really sucks though

    • Morgazee

      531d

      I started showing symptoms when I was really little, like 4 or 5, and didn't get diagnosed until I was 20 years old. It depends on the doctor you get and how seriously they take you.

    • Darkgigglebox

      534d

      I get it, I believe I have it and I've been fighting to be tested completely, I suffer from constant tachycardia that makes me pass out or I sit up from the floor and just drop from getting dizzy, I have a history of endocarditis and I have a defect in my heart, one symptom I don't know is from pots is I find it hard to breathe but not asthma but like my chest is being zip tied.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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