Frustrated with Undiagnosed Symptoms

I’m starting to get so discouraged, I found a new doctor who I like and takes me seriously but still no diagnosis (I am not diagnosed with pots). I told the doctor all of my symptoms - dizziness, rapid heart beat, feeling like I might faint, having episodes the day after drinking or after eating large meals. My blood pressure goes up after getting up sometimes and they took it at my appointment and it was really high like 136/106 or something like that and they just said they’d retake it later which they did manually and supposedly it was lower. Anyway they tested my blood sugar which was normal and my iron but idk if that was normal because he hasn’t called me yet. Once he does call me I think they’re supposed to give me an ekg monitor and something to test my blood sugar at home but I’m just not confident I’ll get a diagnosis. I had another episode today which makes me feel like I’m going to have a heart attack and die so I’m just stressing and don’t know what to do anymore. Just want to start feeling better 😩 anyone have any clue what may be wrong with me and why it’s not obvious to my doctor? Thanks!

Your answer

DieselWeasel

2y ago

Others have already given the correct answer. You would need a referral to a cardiologist and an electrophysiologist. You will need a tilt table study and maybe a 30 day monitor.

aine123

2y ago

Hyper andregenic POTS can cause high blood pressure when standing and all of those symptoms, they might try to dismiss you for having high blood pressure as they think POTS = low blood pressure but that's not true. Hyperandregenic POTS exists

Katherine77

2y ago

I agree with getting a tilt table test. Usually with POTS your blood pressure lowers when you stand up and then the tachycardia kicks in because it's trying to get oxygenated blood back to your brain. I had sever episodes and paramedics used to have to take me to the ER all the time. Now that I get IV fluids, I still get dizzy and black out a bit but don't completely pass out... My cardiologist stinks and I need a new one so try to find one with Dysautonomia experience. Best wishes to get the correct diagnosis.

Dorkasaurus

2y ago

I'd ask for a Tilt Table test. It's hard to get a Dx bc Drs aren't very educated on it. Most don't know what POTS is, despite it not being an uncommon condition. Cardiology is a good way to go. If you want to see Neurology, look for a dysautonomia specialist. You can do this! You can also try a beta blocker with your current doctor. If you can, try to record your hr & bp everyday, 1x laying down, 1x sitting up, 1x standing, and any time you're having an episode. That data will help you & the doctors. I personally have POTS, Neurocardiogenic Syncope, and Panic Disorder, that all affect & trigger each other.

Mcmeadow

2y ago

They should have referred you to a cardiologist for a tilt table test already. I would request a referral to a cardio and if they refuse then ask them to put in your chart that they're refusing you. That way it's documented.

sparklyangel

2y ago

I agree! I would try a cardiologist first. if everything's normal it could be anxiety.

sparklyangel

2y ago

what kind of episodes?

Moongirl

2y ago

I don’t really know how to explain them but all of a sudden I feel like I’m going to have a heart attack and die or something. I can’t really explain the feeling

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