I have experienced all of your symptoms and I was diagnosed with dysautonomia/pots in 2018. My whole cardiac workup was completely normal! The main tests that help with a diagnosis of POTS is stress test, tilt table test and ansar testing( this one is important) If your cardiologist hasn't offered these, in my opinion, I would find a new cardiologist. Advocating for yourself is key!

I understand the TTT issue! I don't know if you could ask about ansar testing? It will confirm an autonomic dysfunction if you have one. I am on metoprolol and midodrine that has made my tachycardia issues somewhat easier to deal with. Before starting my medication I had low blood pressure and my heartrate would be 180 from just standing up! What I have found that helps most with tachycardia related issues is compression socks, salt pills and lots and lots of electrolytes and water!

If you are up for it, marijuana has been an enormous help for me. Gives me the fortitude to do what I need to do at times, but also is great for pain and anxiety relief. Especially since you have high bp issues, MJ can help with that I hear. Of course, it helps to be in a state where it’s legal or where you can get a med card. I won’t lie… it’s not the cheapest thing. But worth it IMO.

Sorry you're having these issues. They do sound like my pots. Unfortunately it's a terrible illness. If you want to be certain you can ask for a cardiac MRI. You can ask for a DNA test to check for mutations. You can do a nuclear stress test. You can get an implanted cardiac monitor. It's tiny , smaller than a pill and it goes under your skin on your chest. It will monitor any irregularities automatically and it gives great peace of mind. It lasts about three years. I also have GERD and found it was causing a lot of my palpitations on top of my already high heart rate with pots. I take a ppi but I also found the h2 blocker famitodine got rid of my palpitations.

Thanks for the response. Yes, this illness has certainly changed my life completely. I have always been very curious if my GERD contributes to my palpitations, especially the force at which my heart beats and my frequency of PVC's. After nearly every meal I eat, I get an increase in heart rate and very forceful heart beats. I was in the ER for PVC's and rapid heart rate one time, they gave me oral and IV gastric meds that did calm my palpitations. Do you have an official POTS diagnosis? I think I have Hyper POTS. My blood pressure runs towards the high end and things like salt, fluids and compression stockings don't offer any relief. The thing that has helped the most so far has been beta blockers.

I have all this but gerd. Just diagnosed with pots