How did you get diagnosed with POTS?

Moongirl

495d

Hello everyone who has been diagnosed with pots how did you work towards your diagnosis? Did your doctor send you to a cardiologist? And based on what symptoms? Thanks!

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Palpitations

Anxiety (Including GAD)

Dizziness

Propranolol

Psychogenic non epileptic seizure

Osteoarthritis (OA)

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Top reply
    • Drewsdad08

      494d

      Wow I’m wondering if I have this. I thought for me it was associated with arthritis. I feel this when I’m tired in mornings and usually after I’ve been working for about 6 hours. I honestly have only been to my internist once since start of Covid. I suffer from cluster headaches almost daily. I’m way overdue for bloodwork.

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    • Crowlux

      495d

      2 cardiologists and 2 neurologists over a 5 year period refused to diagnose or even test me for POTS, I ended up going to an internal medicine doctor, did a poor man's tilt table test, I met the diagnostic criteria and my NP was comfortable with making that diagnosis and doing research to help me, sad my insurance doesn't cover her anymore

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      • Moongirl

        495d

        @Crowlux oh wow. Could you tell me your symptoms? I’ve always had heart palpitations and dealt with a racing heart/difficulty breathing. Getting to the point in my life where I want to look into it and get it taken care of because I have some scary moments sometimes. Also what’s an internal medicine doctor, is that like a naturopathic doctor?

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        • Crowlux

          495d

          @Moongirl Internal medicine is a medical specialty like cardiology for example, except internalists deal with a wide range of medical conditions ranging from chronic conditions to every day colds, they also have a little bit more diagnosis and referral pull than general practictioners or primary care. My symptoms were fainting, light headedness, mental fog/brain fog, blood pooling in the feet, high resting heart rate in the 80s, that would rapidly rise upon standing, comorbid neurological issues ( I had tingling and numbness in my hands and feet), being cold all the time or not being able to regulate my temp, heat intolerance, fatigue... there's a lot sorry 😬

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    • Moongirl

      495d

      I also get dizzy/lightheaded but idk if that’s due to an inner ear issue or not

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    • IndigoBro

      494d

      No POTS diagnosis but unexplained passing out or almost passing out, especially when standing up but sometimes just randomly. Low blood pressure. I’m not even that tall. Cardiologist said my heart was healthy and the other specialist said it wasn’t seizures.

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      • Moongirl

        494d

        @IndigoBro starting to wonder if it’s blood sugar

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        • IndigoBro

          494d

          @Moongirl smart. Yeah probably lol.

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    • Drewsdad08

      494d

      Wow I’m wondering if I have this. I thought for me it was associated with arthritis. I feel this when I’m tired in mornings and usually after I’ve been working for about 6 hours. I honestly have only been to my internist once since start of Covid. I suffer from cluster headaches almost daily. I’m way overdue for bloodwork.

      1

      Reply
      • Moongirl

        493d

        @Drewsdad08 what are your symptoms? I’m not sure I have pots, starting to wonder if it’s hypoglycemia but trying not to self diagnose before I get to a doctor.

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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