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LadyAdonis

654d

I am interested to hear from other people with POTS or disorders related to it. When you were diagnosed and how difficult it was to get the diagnosis?

Top reply
    • Blobster

      641d

      I've had pots for about 10 years now, I passed out at a middle school function and after seeing the nurse was told it was anxiety, carry on to having many fainting episodes during my marching band season and having emts tell me it's just anxiety I went to see my PCP, he put me on anxiety meds after a couple of years of experimenting with those he sent me to a psychologist I saw her for a couple of years she passed me off to a cardiologist who saw me for a few years then sent me to a cardiac specialist after one appointment with him he sent me to a neurologist and thankfully she performed a tilt table test (I begged my cardiologist for months to do the ttt with no luck) she diagnosed me with pots. It took me years of fighting to get a diagnosis

    • Blobster

      641d

      I've had pots for about 10 years now, I passed out at a middle school function and after seeing the nurse was told it was anxiety, carry on to having many fainting episodes during my marching band season and having emts tell me it's just anxiety I went to see my PCP, he put me on anxiety meds after a couple of years of experimenting with those he sent me to a psychologist I saw her for a couple of years she passed me off to a cardiologist who saw me for a few years then sent me to a cardiac specialist after one appointment with him he sent me to a neurologist and thankfully she performed a tilt table test (I begged my cardiologist for months to do the ttt with no luck) she diagnosed me with pots. It took me years of fighting to get a diagnosis

    • AKD

      654d

      I was diagnosed after my sister did some continuing education on POTS and told me that maybe I should get evaluated. She knew a good cardiologist that she worked with, so she suggested him. From there, he referred me to a electrophysiologist. He didn't perform the tilt table test because he just didn't feel it was necessary in order to diagnose POTS. So he diagnosed based on symptoms. I think it also helped because I performed the NASA lean test at home with the assistance of my husband to monitor my heart rate and blood pressure. So I was able to tell him how much my heart rate jumped as soon as I stood up. That and the fact that I felt like I was going to pass out all the time helped to diagnose it. He started me on some meds to see if they helped. If you have any specific questions, I would be happy to answer them

    • Aika

      654d

      Hi! I have issues with feeling tired all the time. Not sure if that's something similar to your experience!

      • LadyAdonis

        654d

        @Aika I have noticed a bit of exhaustion but I mostly deal with dizziness. And I am not sure if it contributes to my headaches but it might be. I am still trying to figure it out.

      • Aika

        654d

        @Aika It wasn't difficult..it was more an answer to how I felt, you know?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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