I wanted to share something positive that might help others. My worst symptom is fatigue. I also struggle to get good sleep. During the day, I'm exhausted. I have to drink coffee to even function and often need an afternoon nap. I have been on Amitriptyline (a tricyclic antidepressant) for many years to help me fall asleep. I have been working with my neurologist and my psychiatrist and trying add on medications for sleep and fatigue. I had a bad reaction to SNRIs in the past (Cymbalta), but we decided to try adding Wellbutrin (an NDRI) during the day to combat fatigue. I'm finding it to be helpful for me!
Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)
Postural Orthostatic Tachycardia Syndrome (POTS)
I also have trouble sleeping. I take several prescriptions to try and help with it. But I don’t have much luck with them. Trazodone is the big I’ve I take. It used to knock me out and stay out for the night. Now I get 1-2 hours a sleep at a time. Maybe 6 hours? Still fatigued during the day. Wish I could take a nice nap. But they don’t come easy toss
and turn forever it seems. Going to try to sleep now. It’s 4 am.
So glad to hear this. Can’t wait to inquire with my doctor about it. Our symptoms sound so similar.
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