Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome Community: Connect, Share, & Heal

Marisapaige1

734d

Autism Spectrum Disorder (ASD)

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome

Pain

Mood swings

Just Got My Blood Test Results Back

So I just got my blood test results back and everything is normal :/ It wasn’t a specific test to determine PANDAS or anything, but it tested the levels of certain things inside my body like globulin, cholesterol, proteins, etc. I heard that a high globulin lvl could mean autoimmune diseases, but mine were perfectly average. Of course, I am still going to talk to my doctor about what these results actually mean, but yeah at least I have some more info on my health now🤷🏻‍♀️

Marisapaige1

735d

Autism Spectrum Disorder (ASD)

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome

Obsessive-Compulsive Disorder (OCD)

Depression

Seeking Answers About My Possible Autism Diagnosis

I’m trying to figure myself out. I highly suspect I’m autistic and my mom thinks it could be possible too, but she also thinks I might have PANS/PANDAS. I know the two don’t rule each other out, and it is possible to have both, but I just don’t know… According to my mother, at age 9 my mental health began to decline and I was extremely anxious and depressed and DID show signs of ocd but also autism. I just don’t know if I ever showed autistic traits before that. My mom doesn’t remember much about how I acted when I was little because her marriage with my dad was very traumatic. I wish I remembered my childhood… I just want answers :(

Raven_Wine

791d

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome

Share your journey with PAN/PANDAS diagnosis

Gonna try this again. Can y’all share your experiences and/or journey with PAN/PANDAS I just got diagnosed

autiebabyyy

815d

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome

Navigating Dating with a Diagnosis

hi!! so glad we matched <3 how are you currently doing and when we’re you diagnosed?

Cammywammy

867d

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome

Dealing with a PANS Diagnosis: How to Cope

Hi all! I was just diagnosed with PANS and I was wondering how you’ve all come to terms with your illnesses? I’ve been battling for apparently several years but didn’t know it. Did you all have a hard time getting diagnosed as well?

Aandeg

879d

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome

Looking for Recovery Stories and Advice

Anyone got any solid recovery stories or advice? Finally figured out what is going on with me but don’t know where to go from here

pandamoose

892d

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome

Looking for PANDAS Support

who else suffers from PANDAS? How long have you had it and how do you cope?

About Alike community

The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.