Looking for PANDAS Support

pandamoose

544d

who else suffers from PANDAS? How long have you had it and how do you cope?

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9

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Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome

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Top reply
    • autiebabyyy

      467d

      My PANDAS journey started around 2009-2010 and every doctor i went to diagnosed me with tourette’s, but my brother kept doing research and he kept telling my mom to ask about PANS/PANDAS. Fast forward to 2020, i saw a behavioral health doctor and she diagnosed me with pandas. I am currently on 25 MG of CBD gummies, it’s helping so much!!

      1

      Reply
      Chat
    • JesusLovesYou

      544d

      Me ✋ I've had it for 5 years and got diagnosed last year! I am in th process of getting IVIG

      0

      Reply
      • katiaa

        541d

        @JesusLovesYou how is that?

        0

        Reply
        • JesusLovesYou

          540d

          @katiaa what?

          0

          Reply
    • katiaa

      541d

      probably since 2012 but diagnosed in 2019. im doing antibiotics n herbals

      0

      Reply
    • Faye69

      539d

      I don't actually remember when mine started but I do have it. It sucks, the only way I can feel somewhat better is with pills. It doesn't always work but it's the best I got

      0

      Reply
    • Aandeg

      532d

      I got it in 2007- I am on antidepressants and use legal herbal remedies 🍃

      2

      Reply
    • lindalol

      503d

      i’ve had it since 2011 and i’m still working towards a good treatment and coping plan

      0

      Reply
    • autiebabyyy

      467d

      My PANDAS journey started around 2009-2010 and every doctor i went to diagnosed me with tourette’s, but my brother kept doing research and he kept telling my mom to ask about PANS/PANDAS. Fast forward to 2020, i saw a behavioral health doctor and she diagnosed me with pandas. I am currently on 25 MG of CBD gummies, it’s helping so much!!

      1

      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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