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Aandeg

Updated 11mo ago

Looking for Recovery Stories and Advice

Anyone got any solid recovery stories or advice? Finally figured out what is going on with me but don’t know where to go from here

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Possumrice

2y

Hi omg! It’s rare to run into someone else dealing with PANDAS so I’m glad I’ve ran into you. I was diagnosed very early and it took a lot of pediatric care to finally have a doctor that understood what I had, since the illness was not as recognized back then. While there is no definitive test for PANDAS, your pediatrician may take blood tests, strep cultures, brain scans or the Cunningham panel that tests for autoimmune disorders. But typically it starts with your family doctor testing for strep via blood or throat swab.
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Aandeg

2y

Thank you so much 💕 and right? It’s so validating to meet other people who have gone through this
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MissMeow

2y

I would say research and learn as much as you can. Learn coping skills that work for you so that you can function in this unforgiving world. It does get better in time.
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alexander1023

2y

Hi I also have pandas and I was not diagnosed until I was 20 years old I'm 22 now and it had been hard
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alexander1023

2y

My parents ignored my symptoms for all of my life
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coolcucumber123

2y

blood work for strep antibodies and immune markers, antibiotics, immunoglobulin infusions, and a good therapist are what helped me. i had a particularly severe case ~10-14 complicated by complex trauma and i am now symptom free! pandas physicians network website has resources. this disorder SUCKS but you can get through it ❤️

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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