Hello! So how do you guys manage to not fall down constantly with CMT? I am getting older and it's to the point where it hurts a lot worse than when I was little. It's also super embarrassing. I don't necessarily know if this has to do with my foot drop or my CMT, but I'm sure they go hand in hand. Thank you!
do you wear AFO's? if so, how did you receive them? did you do it through insurance? can you do it without insurance? I've had the ones I wear now for 10 years or so and am super overdue for a new pair, but I don't have insurance.
Hi I am really struggling with my charcot marie tooth syndrome. I have type 1a And I really struggle with stairs. Has anybody here Had the reconstructive surgery on their feet? How did it go for you? Any tips on managing this? Or for my diabetes has anyone been on the new Omni pod curious how good it works.
how many types of cmt are there? which is the more "severe" type and which ones are the less severe types? I have cmt and have had it my entire life, but I am not sure which type I have.
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)