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reneeisawarrior

793d

Hi I am really struggling with my charcot marie tooth syndrome. I have type 1a And I really struggle with stairs. Has anybody here Had the reconstructive surgery on their feet? How did it go for you? Any tips on managing this? Or for my diabetes has anyone been on the new Omni pod curious how good it works.

Top reply
    • melloooo

      690d

      i had mine in april on my left foot and as of today only my right foot has been giving me pain!! i definitely feel more confident going up/down stairs with my left foot first which has changed since before the surgery

    • melloooo

      690d

      i had mine in april on my left foot and as of today only my right foot has been giving me pain!! i definitely feel more confident going up/down stairs with my left foot first which has changed since before the surgery

    • stevenweb

      723d

      No but my doctor said he only wants to do that in older people cause it would involve fusing my ankles and I have type two

    • Shaquille.oatmeal

      766d

      I had foot reconstruction surgery when I was about 13 and then again when I was about 14. If I didn't get the surgery I would not have been able to walk by the time I turned 18. The surgery helped immensely! I sometimes have troubles with the high altitude and cold weather as I just recently moved to the mountains. But I have the option to get the hardware removed. I was so scared at first but I am so happy I was able to get the surgery. The only down fall is you are not allowed to put any pressure on your foot for about 6 weeks, but that might have been just me since I had tendons moved and bone removed. It hurt so bad when I had accidentally fallen on it, but no damage was done. Overall 10/10. I am so grateful for my surgeries

    • Krsjr

      785d

      Hey, oh I get it. I live in a home with stairs 😥😢 it’s a struggle when I 1st moved it I said oh it’s okay it will be good exercise but yea right it’s dreadful. My kitchen and laundry downstairs I spend a lot of time in my room in bed I try to walk around my room and I have a indoor bike. But I’m not motivated. Pain sucks. Going down the stairs is scary. Up is just painful on my legs and feet. I’ve done zero surgeries, I’m actually avoiding it. And no way I could now with this home I’m in.

      • reneeisawarrior

        784d

        @Krsjr :( I’m so sorry

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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