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48d
Hello Alikers. Anyone with SLE suffering with joint pain over being in pain all the time? I feel exhausted from having this intense joint achyness all the time. I’m over it!! I’m tired of taking all these medications, I want to feel normal again!! 😭😭 I feel like I’m losing my mind here. I just want to cry!!! 😢
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Systemic Lupus Erythematosus (SLE)
Joint pain
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47d
been me lately! last 3 months has been a constant flare (after a couple months break from a flare - i thought my diet was working) & now im just in pain almost 24/7. i dont have energy or motivation, my PCP cant help me anymore until i get a rheumatologist but theyre impossible to get an appointment with. Probably 8 months now waiting for a ‘maybe we will call you’. Sick of it, i never feel like im taken seriously by healthcare workers cause of my age, visit frequency, and lack of answers from tests. they just wanna throw opioids in our faces to sit and be quiet, and opioids have never worked for me! i feel your frustration 🥲 i limited myself to light stretches & as much brisk walking as possible, it helps my lower back pain, but some days feel impossible. flares are awful and i hope you can get through yours as well 🙏
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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