Concerns about increased pain and loss of mobility

i have a couple questions. I was diagnosed at 13 and havent had to many complications since. Well in the last year I've had increased shoulder pain, they did a X-ray and they didn't find anything wrong with my bones. I spoke to my neurologist and they said that none of my things are NF related but I'm concerned that I have a tumor on my nerve. I have a lot of pain, loss of mobility, and muscle weakness. Anyone have any advice or ideas? along with this ive had trouble with my chest (pain, palpation, and shortness of breath) I just feel it's a lot of. just wait and see it if it continues, getting tired of feeling like I'm crazy