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Capell

740d

My doctor thinks I may have this condition, but o won’t know until I visit a surgeon tomorrow. I have soft tissue lumps that have grown under my skin on my upper arms, thigh, and abdomen. It scares me because I don’t know what it is or why. Cancer is always a scare. The lumps aren’t that big to where you can notice them by eye, only by touch.

Top reply
    • Tater_Lynn

      614d

      I will say that most NF tumors are not cancerous, but they can eventually become cancerous, none of mine yet have thank goodness. NF can be genetic or from spontaneous mutation. NF1 is formed by a mutation of cells in chromosome 17 and NF 2 is in chromosome 22 I believe. I’ve done a lot of my own research. I would definitely recommend finding a neurologist that is familiar with the disease. If you have any questions and want to message me you can cause I don’t want to drag this comment out super long

    • Tater_Lynn

      614d

      I will say that most NF tumors are not cancerous, but they can eventually become cancerous, none of mine yet have thank goodness. NF can be genetic or from spontaneous mutation. NF1 is formed by a mutation of cells in chromosome 17 and NF 2 is in chromosome 22 I believe. I’ve done a lot of my own research. I would definitely recommend finding a neurologist that is familiar with the disease. If you have any questions and want to message me you can cause I don’t want to drag this comment out super long

    • diaperboy

      733d

      There are several other ways to diagnosis NF a few factors are learning difficulty, cafe au lait spots, freckling of the armpits known as crowe sign. At least two tumors often plexiform. Does either of your parents have neurofibromatosis?

    • Andrewmills

      739d

      I hope things go well today!!

    • Capell

      740d

      Him as in my doctor. He said I may have Neurofibromas. All he did was check one or two of the bumps and was like I’ll recommend you here and that was it.

    • Andrewmills

      740d

      They are not neurofibromas? I have a brainstem tumor 🤷🏼‍♂️

      • Capell

        740d

        @Andrewmills That’s the word he used. However the visit with him was very brief and fast. He just recommended to a surgeon I am going g to see tomorrow. I am just worried because this is not something that runs in my family so I have no idea how I would’ve gotten it. I am still hoping it’s still some other condition that is treatable, but idk.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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