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Anastaiya

29d

I have recently been diagnosed with multiple myeloma with the main tumour around my pelvis. I have finished a phase of radiotherapy and now waiting to start my chemo. This is either going to be oral or sub-cut. Has anyone experienced anything like this? Anything to expect?

Top reply
    • Michele.PatientPower

      4d

      @RubenW @RubenW How did you feel while you were on this treatment and how were your results?

    • RubenW

      14d

      I went with Subcutaneous chemo, because for me the injections were just a quick pinch, and I was done! it is administered at the hospital, and I felt more monitored and cared for.

      • Michele.PatientPower

        4d

        @RubenW @RubenW How did you feel while you were on this treatment and how were your results?

    • JordanRowman

      14d

      I feel oral chemo was more convenient since I could take it at home, but it made me feel more fatigued.

      • Michele.PatientPower

        4d

        @JordanRowman @JordanRowman How long were you on your oral treatment? Was it just one?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One person shared their experience with a similar situation, stating that they were diagnosed in September 2019 and started chemo shortly after. They were put on Elotuzumab, lenalidomide, and dexamethasone over a period of 4 weeks cycle which was repeated. They did 6 cycles over a period of 6 months and achieved complete remission. They then had 15 days of radiotherapy in their right pelvis. They experienced loss of appetite, taste changes, and weight loss. They also received infusions to strengthen their bones every 4 weeks which will run for another year, but still felt weak most of the time. Another person mentioned experiencing continuous nausea and persistent fatigue after 15 sessions of radiotherapy.

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