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JoDizzle

815d

I'm Jody and I was young and healthy and the first symptoms started when I was 24. diagnosed with crest syndrome in 1996. with not alot of info back then , it took a long time to a hold of just how much it has consumed and robbed me of a normal life. it seems like forever but I still have not met another with our own unique illness. so thank you for having me..

    • Wayu

      791d

      Sweater

    • TokingRainbow

      799d

      I feel the same way. My symptoms started in my 30's, however, not diagnosed until 1 1/2-2 yrs ago. Thank God I became my own advocate and switched Drs.

    • SEAGAL

      801d

      💕I can relate

    • Wayu

      802d

      I was diagnosed before the pandemic Sometimes I have esophagus spasms specially when I eat rice Spasms are painful the pain locates in the upper abdomen area Rice gets stuck and doesn’t want to move towards stomach and you start salivating a lot You can’t even pass saliva it’s very annoying Bottom line I avoid eating rice. I have also developed intolerance to low temperatures My feet and hands tend to get very cold even if the environment is not cold I feel cold. It’s an annoying disease, rare, no treatment or cure. But it could be worst so I try not to complain

      • Overcomer

        802d

        @Wayu my hand especially right hand get very cold too. Scleroderma can give you another disease that causes hands and feet to be cold. Please use socks, gloves and sweater. The goal is to stay warm and protect yourself especially hands and feet

        • Wayu

          791d

          @Overcomer yes I look like an old lady with seater, socks and I guess I will have to start using gloves at home LOL!

    • JoDizzle

      810d

      Me too

    • Overcomer

      812d

      I was diagnosed last year but I guess I had symptoms for a while. My feet shows but I never knew and it seems like I had it for two maybe three years now

    • JoDizzle

      815d

      I guess I'm sharing cause I have never really told my story. Thank u for listening.

    • Dodgegirl

      815d

      🙏

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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