Explore Over 11,000+ Conditions, Medications, and Symptoms.

Get a personalized feed by signing up for free.

avatar

SEAGAL

2y ago

Living with Sjogren's Syndrome: My Journey

Hi I was officially diagnosed with SS in the 80's but in retrospect I believe I had it all my life. I am now 74 soon to be 75 years old. I have gone through many stages of this illness some issues have ceased and are replaced by new ones. I recall in the mid sixty's after I had my 2 sons by a C section my fatigue,flu like symptoms and healing abilities against infections worsened. I was always told my fatigue and aches in my muscles and joints was in my head so I dealt with it as a young mom and sneaked in naps whenever I could. I returned to college at 37 to become a court reporter and was abruptly pulled off course when I was at the apex of my new career. I began getting very painfully ulcerations in my finger tips. I was prescribed antibiotics and my body was not responding. I returned to the doctor and he was on vacation. The attending physician was familiar with SS and after asking some questions and viewing the red blotches on my face sent me to a specialist and my life on the doctor trail began and I was diagnosed with ss. I attended 5 clinics as a out patient at a teaching hospital and was hospitalized every year for pneumonia. I was on many drugs that have been taken off the market or caused other issues with me. I have gone through many years of trials and error. Now that I am much older I eat healthy, exercise by cycling, walking and swimming. I rest when I am tired. I take daily supplements, vitamins and CBD which for me works well and helps me live a happy life.

Your answer

avatar

Overcomer

2y ago

It seems like the first few years are the hardest for chronic conditions. I wonder if it is the same for scleroderma
avatar

Jess2e

2y ago

I was diagnosed with SS at 37 and now 42. Eating healthy, little carbs (all gluten free) little sugar and limited dairy allow my body to work it’s best. Also, I take supplements daily that help a ton. It’s a struggle but I’m managing match better today than I was 5 years ago.
avatar

Overcomer

2y ago

When were you digonsed with scleroderma? And how do you manage both? I am 50 years old and new to both. I give up on going back to work at this point. I am trying to manage fatigue which is the worse thing for me. And when stressed I become sicker. I also fighting back with fingers pain and stiffness. Now looking back I think I had SS for awhile and scleroderma around two years before diagnosed.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc