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The Struggle of Living with Chronic Illness

chillspoon

546d

When you get a chronic illness, no one tells you how depressing it is. I have a couple illnesses that prevent me from doing martial arts, running, or even just walking more than 5 minutes at a time. I started dating again in attempts to lift my spirits. I'm in an active outdoorsy college town. I have to comfort all the strangers I talk to telling them not to feel bad for me since I can't do what they can. It's draining and it's so hard to find pleasure in just video games, smoking weed, going to school, and working. I'm miserable but I keep up this happy front all the time because it feels like I have to.

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5

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Postural Orthostatic Tachycardia Syndrome (POTS)

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    • rylesmcgyles

      532d

      My symptoms started when I was 13 years old, and before then, I was an extremely active and social kid. I’m now 21 so it’s going on 8 years of a complete lifestyle change, from active and happy kid to sedentary depressed young adult. It’s especially disheartening because I’m just now starting to be taken seriously by doctors, and if I had known half of what I do now when I was younger, if doctors actually looked into my symptoms instead of gaslighting me, I could’ve lived my life a little more than I did. Living with a chronic illness is depressing in itself, but living with one that’s constantly ridiculed and not taken seriously like POTS can literally take away years of our lives, it’s extremely depressing.

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    • rylesmcgyles

      532d

      My symptoms started when I was 13 years old, and before then, I was an extremely active and social kid. I’m now 21 so it’s going on 8 years of a complete lifestyle change, from active and happy kid to sedentary depressed young adult. It’s especially disheartening because I’m just now starting to be taken seriously by doctors, and if I had known half of what I do now when I was younger, if doctors actually looked into my symptoms instead of gaslighting me, I could’ve lived my life a little more than I did. Living with a chronic illness is depressing in itself, but living with one that’s constantly ridiculed and not taken seriously like POTS can literally take away years of our lives, it’s extremely depressing.

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    • ChronicIllnessBabe

      537d

      Omg your post has me getting chills because that’s EXACTLY how I am!! Having POTS and hEDS makes dating really hard too… I feel like I can’t measure up to anyone because I can’t even keep up walking next to people.

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    • XElliottXOrionx

      541d

      I get it, I had to stop working I can barely walk to the kitchen just to get food, and I'm so worried about my partners and them both getting tired of my issues but we have to keep going and hope that it gets better, even minutely ya know? As hard as it is we gotta stay positive

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      • chillspoon

        540d

        @XElliottXOrionx thanks for sharing yeah totally I'm so sorry you had to go through that.

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        • XElliottXOrionx

          540d

          @chillspoon it's just nice to know we aren't alone I've been looking for a community that experiences things like I do, because I don't have that in person ya know, it's exhausting and people who don't have these issues dont always understand how bad it is.

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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