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CoffeeAndDogs

634d

I'm so fed up with having to fight day in and day out against my body to have any semblance of a life. I'm so tired of it. I'm so exhausted. I'm so broken, hurt, and angry that I have to go through this. I try so hard and it's difficult to feel like anything is getting any better.

Top reply
    • SoSick

      600d

      I feel like this too. :(

    • SoSick

      600d

      I feel like this too. :(

    • A_Delicate_Flower

      602d

      💕I feel this💕

    • LIGHTINTHEDARK

      603d

      I couldn’t relate more to this! Keep going my fellow fighter!! 🥺🥺🥺

    • Doglover25006

      633d

      I hope that my journey can give you some hope. For the better part of the last three years I was exactly where you are. Disabled from my pain and at my lowest point with my mental health. Exhausted from the fight every day to just get through the day and tired of the pills and treatments and lifestyle changes that were not helping my pain or my mental health or my fatigue or my gi system. But I finally found some things that help me. And now most days I am pain free and the most in control of my mental health that I have been in my entire life. Things will get better. I’m happy to listen any time and to share what has worked and what has hurt me in my journey.

      • CoffeeAndDogs

        633d

        @Doglover25006 I've honestly done it all. Dietary changes, exercising, therapy, physical therapy, medications, herbs and supplements, chiropractic, acupuncture, injections, etc etc. I cultivated hobbies. I adopted a dog. I gave up toxic relationships and tried hard to make new friends. Despite it all, I will never not be sick. I didn't struggle with my mental health like this before I became physically disabled. I cope as best as I can but there are just certain things I can't do anymore and likely will never be able to do again. I can no longer drive. I can no longer hold down a job. I have no means of income and had to move back in with my parents in my 30s and be completely financially dependent on them. I've lost almost all of my friendships and all of my romantic relationships to my illness. It is a lot. It is so heavy to have lost so much of my independence and a "normal" life. No matter what there are so things I can't overcome physically and I don't know how mentally to overcome my lack of ability to overcome the physical stuff.

      • Raquel226

        633d

        @Doglover25006 I'm happy for you that you seem to be doing better. Are you willing to share what helped you get to that point?

        • Doglover25006

          633d

          @Raquel226 absolutely. But it’s A LOT. DM me?

    • TheJubilantJake

      633d

      Never never never give up ❤️🤗

    • AlyWare

      633d

      I can totally relate. It’s so draining to constantly be in this pain body. I get so bummed out when I think of my new reality and whenever my doctors say” manage your symptoms”. When I’m telling them of a side effect or issue that I have. No one gets it and I have to constantly be my own cheerleader just to function on a low level. I meditate ALOT and use cannabis to help with pain. It just never ends and it feels like it progresses. New symptoms all the time. Hang in there and be kind to yourself. That’s the best advice. Really frustrating and lonely. But I try to really embrace any brief moments of joy or peace that come my way. It really sucks and it’s like I have an alien that has taken over this body and mind.

      • CoffeeAndDogs

        633d

        @AlyWare Yes so so so true. While I manage and I cope because I have no choice, it doesn't make it good or okay or go away. The constant cheerleading and pushing myself up what feels like an impossible mountain with no end that just keeps progressing. I do a lot to try to occupy my mind and my time. I try to live a calm and peaceful life and take care of myself. Use cannabis a lot but only so much cannabis can do also. It is so frustrating and lonely.

      • Raquel226

        633d

        @AlyWare I can relate with so much of what you've said, and see that we share about a dozen of the same diagnosis. If you ever need to talk feel free to reach out.

    • Samilyn

      634d

      I do think reminding yourself that yeah... maybe all you did today was xyz... but you did it carrying your own bodyweight... and a lifetime's collection of unresolved fight or flight type pain response to injury you could not identify and/or relieve/cure... and there was no bootcamp to prep your mind and body to carry all that gear.

      • CoffeeAndDogs

        633d

        @Samilyn It sucks that even trying to heal from my stress and trauma and the things that contributed to becoming ill that there is no undoing it. My heart wants so much more from life and it breaks a little bit that it seems to be unobtainable. It can be so hard to feel like there is any use in even trying. Over 10 years of illness now and it just feels like a lifetime of nightmares.

      • SoSick

        634d

        @Samilyn love this

    • MystikMandy

      634d

      I'm feeling this so much today you are not alone

      • CoffeeAndDogs

        633d

        @MystikMandy Thank you 💕 hope the feelings pass soon for you too

    • s.jco

      634d

      You are absolutely not alone. J focus on getting through one day at a time and i can 100% promise that before you know it time will pass and things will start getting better. Make sure to acknowledge the little wins every single day like even j getting out of bed or talking to a loved one is a huge accomplishment. Focus on the things you can control, you got this💕💕

      • CoffeeAndDogs

        633d

        @s.jco That is true. It is hard to give myself credit when I feel absolutely miserable and I want so much more out of life. I want more than just getting out of bed and it is all so unfair to not have that control.

    • Wetmokakisses

      634d

      There's a chance lot of days that I feel like this. Although I claim that this disease is not going to win,I often find myself letting it win. I am finding that meditation and lots of self daily care helps me feel better about things. I hope you find something that works for you 💜💜💜

      • CoffeeAndDogs

        634d

        @Wetmokakisses Thank you. Yes, I have my good days and my bad days. But the bad days have me crawling out of my skin and nothing I try seems to make me feel better. I have been really struggling with my mental health this year. I do all the things, but can't cure my chronic pain or fatigue. They've stolen so much from me and I can't get the world to even acknowledge that. Lack of control of your own body is just crushing.

        • SoSick

          634d

          @CoffeeAndDogs exactly.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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