Living with Active Secondary Progressive MS

💕I feel your pain and fear. The problem is that we just don't know. I wish I had a magic cure but I don't. No one does. Stay as active as you can and never give up on yourself.

I saw a new dr this past Friday. He’s not only a pain specialist, he’s also a MD. We talked and examined my situation for over an hour. His conclusion to me was he felt I had been misdiagnosed and that instead of MS, I actually had ALS. I don’t know anything about that. He also insisted that I get a wheelchair instead of a walker due to muscle weakness and cardio reaction. He wants me to see a new neurologist immediately for testing and an internal medical dr asap to assertion the strength of my organs. Also, he prescribed Lyrica and wants to wean me off of all my narcotics. He said their are other treatments for the disease that can be used but not in combination with opioids. I’m scared to death of coming off all my meds and what I will experience pain wise. Let alone what I’ve learned about ALS since he said that. I’m just reeling in emotions and thoughts.

That's a lovely thing to share. Fear of not being able to be ourselves can be so damaging. But for me I still stagger around the house, and use several types of wheeled devices for going out or different activities. The only thing I truly miss is I can't swim anymore. I can use a pool but I sink!