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Chesbro99

880d

Does anyone know the long term outlook for people with fibro? I'm sure it's not great

Top reply
    • HarbingerOfChaos

      880d

      Yeah, it's mostly just not giving up. Maintenance is always easier than fixing something, and that goes for fibro stuff too.

    • HarbingerOfChaos

      880d

      Yeah, it's mostly just not giving up. Maintenance is always easier than fixing something, and that goes for fibro stuff too.

    • Chesbro99

      880d

      Thank you all for all the advice is sounds like what I thought. I take gabapentin too and it helps me a lot, like giving life back help. I'm lucky that my meds help so much that I don't have to mess with my diet yet. It seems like everything is just about hope right now

    • HarbingerOfChaos

      880d

      The long term outlook is very individualized, but my understanding is that unless we find a cure we just have to keep trying to keep our symptoms under control as we age and build up tolerances to any prescriptions we're on. It's not a death sentence, but you do have to make changes to minimize the impact that it has on you. I have found a combination of prescription meds and lifestyle shifts that have it where I am able to live life well. I still feel every cold front that comes through and have to be aware of my limits, but some of that seems to be just getting older. I can't eat junk food or be sedentary without feeling awful, but I also get pretty immediate feedback for when I do something that my body does like. I recently started a kickboxing class and walk 3-5miles most days with my husband. But I started by just going on short walks to get my body moving and yoga to stretch out my problem areas. I realized that dairy triggers an inflammation response for me and cut it out, and started to pay attention to how much sugar I was eating. At this point I'm trying to make the changes that will allow me to stay on as low of a dose of my meds as long as possible, since I caught my fibro young, hopefully have a lot of time ahead of me, and don't want to reach the point where I'm at the maximum dose of gabapentin and need more.

    • Edens48

      880d

      I only take Tylenol, get lots of rest, use hemp oil and cbd oil on all my aches and pains. Eating healthy and exercising can help.

    • UnluckyUnicorn

      880d

      If you find a lifestyle that works best for then I’ve known people who had close to no pain and lived what they deemed a great life. It’s a struggle finding the medication and/or non medication options that work best for you but life can improve! You don’t need to be cured to have a full life but I do wish you many pain free/low pain days as possible ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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