Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

ChronicWitch

Updated 11mo ago

Dealing with Crohns Disease and Flares

A little background before I ask my question. I’ve had Crohns Disease for almost five years now. Had symptoms started in my mid teens and I’m going on 26 now. I’ve been on infliximab (Remicade) infusions for the better half of my treatments. Since July I’ve been in an out of flares. Weight fluctuates, lots of nausea, little to no appetite and something new: bloody stool. Saw my GI this week and I asked about the possibility of this being my gallbladder. It’s in the back of her mind but due to my colonoscopy in December came up “normal/clear” and feeling miserable she wants to do a MRI Enterography. Has anyone had one of these and can explain their experiences?

Can you help? Connect today

avatar

Smitty

2y

Hey there! I have gotten a few MREs in the past, I get them regularly (about once every two years) just to make sure everything is good. What would you like to know? Ask me anything!
avatar

ChronicWitch

2y

I guess how terrible is the contrast and how long does it take? Im awful with my own colonoscopy prep and such makes me gag and of vomit terribly lol.
avatar

Smitty

2y

You’ll have to drink it within an hour I think and to be honest it tastes bad haha. I have vomited once before and then I had to start all over again. 😩 so i try really hard to just get it down quickly and keep it down.
avatar

Smitty

2y

It’s usually three bottles in a row and they usually give me a straw so it’s easier to drink quickly
avatar

gretavanfleet

2y

The dye contrast you have to drink is AWFUL but the rest of the experience is similar to a normal MRI. You have to drink the bottles in like a set time period and they make your stool kind of white but overall it’s an easy procedure.
avatar

Smitty

2y

Yeah overall you just have to lay there and hold still when they tell you to. If you’re lucky they’ll play music for you through headphones :) it’s only happened with one technician I had but it was the best
avatar

seahorsesforever

2y

Yes I got the MRE that showed I in fact needed my gallbladder out and that I was right about my suspicion. It’s not bad at all
avatar

lilgumshoe21

2y

I’ve had 2 different types of contrast: barium (a thick white chalky substance) and another that I don’t know the name of (it’s clear, salty, sweet, and clearing-ish fluid). The barium seemed to move a little slower through my digestive tract than the clear fluid. I had mega-shits immediately after the scans each time. And I was so afraid I’d have an accident on the table that I warned the doctors so they put a potty pad on the table just in case. I would hate for anyone to have to clean up an accident after me. But I’ve been lucky to not have any accidents while at the doctor’s office. All in all, the drinks are nausea inducing but tolerable at the same time. The scans are usually done within 45-1hr depending on the type you’re having done. But if you don’t like tight spaces, let the doctor know and they may give you something to help you relax while in the machine.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc