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ConfusedTeddyy

702d

My chronic pain keeps getting worse every time I have a flare up. Mixed with the chronic swelling it’s awful. The rheumatologist I was seeing just said I have RA and fibromyalgia without checking cos my mom has them. But wouldn’t help with medications for a year plus. I’ve literally been on just hydroxychloroquine for about two years, with chronic pain and swelling so bad I had to quit working and need a wheelchair when I leave the house. I’m seeing a new rheumatologist, hopefully, soon. Any tips on presenting what’s going on so that I’ll be listened to?

    • lovelylo

      702d

      have you ever been tested for lyme disease?

    • wise

      702d

      Call your meds by their long ass pharmaceutical name and acknowledge your "positive family history" (the phrasing is important, that's how they chart it in their notes and shows you read and understand their appointment notes). Anything to let them know you're not stupid, you're not claiming to be smarter than everyone else, just that you know your own body very very well. I've found that going into an appointment and talking shop will either have me taken seriously immediately or it touches a nerve and the doctor with a degree he spent 12-16 years and hundred of thousands of dollars on gets mad that you think you know it all

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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