Feeling Helpless with Misdiagnosis

Sometimes when I’m not feeling well i completely shut down. I just feel helpless & stuck in this cycle illness. I feel like my previous rheumatologist tainted my medical chart/history by quickly diagnosing me with fibromyalgia. Nobody what is wrong with me doctors now automatically assume “fibromyalgia” most doctors barely want to check for anything else because fibromyalgia has every symptom imaginable. At times I’m so afraid that one day I’ll just fall dead or be terminally ill just because doctors didn’t take me seriously early enough. I know fibromyalgia is an actual condition but I also think doctors say everything is fibromyalgia just to get you out of their face.

Your answer

SJP

2y ago

I hear you. If I didn't keep pushing my doctors, I never would have found the source of my neuropathy and some other conditions, because I ended up having Non-Celiac Gluten Sensitivity and multiple food allergies. They still haven't been taking good care of me, so I do a lot of my treatment at home. Let me know if there is anything I can do to support you

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