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Evie1998

614d

Sometimes the pain is too much and I just wonder if I really have fibromyalgia... It's more joint pain than anything and my rheumatologist is at a loss on what to do. Just wish something could get done so my pain is less...

Top reply
    • History.and.cats

      611d

      My doctors were thinking of diagnosing me with fibro alone for a long time. I just got that official diagnosis now, 8 years later. But I ended up having hypermobility issues as well, that's where a lot of my joint pain comes from. I don't know your other symptoms but it is worth a Google to see if it lines up

    • History.and.cats

      611d

      My doctors were thinking of diagnosing me with fibro alone for a long time. I just got that official diagnosis now, 8 years later. But I ended up having hypermobility issues as well, that's where a lot of my joint pain comes from. I don't know your other symptoms but it is worth a Google to see if it lines up

    • QuinnH

      614d

      My pain is exclusively in my joints. All my labs and imaging are good. My specialist is 100% sure it's fibro. Rheumatology handed me to the specialist I've got now because they felt they couldn't do anything.

    • magbub

      614d

      You may want to look into a Lyme literate doctor! Also take a look at the book, the Invisible Kingdom. It helped me feel a lot less alone. It’s a journalist who takes you through her entire illness journey with doctors and talks about chronic illness as a whole in our world. Hoping you get some answers, soon! Xoxo

    • CoffeeAndDogs

      614d

      I always suggest that everyone with a Fibromyalgia diagnosis ask to have imaging (like an MRI) to rule out degenerative diseases, and bloodwork for autoimmune, vitamin deficiencies, and hormonal imbalances. What meds have you tried? There are a variety of types of med that can be tried- anticonvulsants (Gabapentin, Lyrica), a whole host of different muscle relaxers (Cyclobenzaprine/ Flexeril, Zanaflex/ Tizanidine, Baclofen, Methocarbamol/ Robaxin), or multiple types of antidepressants including SNRIs and tricyclics. Have you explored topicals (lidocaine, voltaren, topricin, etc)? Supplements? Cannabis (and/or CBD), if legal? PT? Massage? Acupuncture? Chiropractor? TENS unit? What about injections? Epidural steroid injections or trigger point injections? Cognitive Behavioral Therapy (CBT)? Dietary changes? Elimination or Anti-inflammatory Diet?

    • NickGobes75

      614d

      Have you had blood tests? What if you asked to try plaquenil? It’s the same thing as hydroxychloroquine. It’s the med they give everyone when they are first diagnosed with a connective tissue disease like RA/Lupus. It might help you and get you diagnosed if you have a seronegative disease.

      • Evie1998

        614d

        @NickGobes75 I've had tests done to see if I had RA but it came back negative, but that was also years ago... But thank you! I'll look into it and ask about plaquenil

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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