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Seeing about a dozen specialists and I take about two dozen meds to treat a variety of symptoms because whatever is wrong with me is having an effect on basically every system in my body. None of my specialists are connecting the dots. I just keep getting sicker year by year despite being pretty young yet. Caring and advocating for myself is a full time job and my issues prevent me from working at all. Despite all this, still trying to find joy in life but I'm so exhausted and I'm tired of getting worse with no one really knowing what's going on. Thanks to anyone willing and able to listen.
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It's not necessarily one thing affecting every system. Your body is like one of those super cool 20,000 domino setups, if one domino falls, the rest are very likely to follow. That's also why you're more likely to develop other autoimmune disorders if you already have one. You're right, it's unbelievably exhausting to have to manually/consciously do the things that you're not supposed to have to think about. No matter how good you get at taking a billion pills, it's still a billion pills, and some of them have to be taken with food, some require a specific kind of food, and there is very little margin of error with regards to accidentally missing a course of meds. Advocating for yourself is exhausting, it's not supposed to be your job, but you're doing an amazing job at handling everything life has thrown at you
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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