Adjusting to POTS and Seeking Disability

Mine was greatly exasperated after the 2nd covid vaccine.

Please consult your physician before doing what I am about to suggest. POTS patients are typically recommended a minimum of 2 liters of water and 3,000-10,000 mg of salt per day. I increased my daily intake of both liquid and salt, and that seemed to help, especially with the temperature regulation. Additionally, I use a cane or a standing rollator to stay mobile but safe and supported. I use a finger pulse oximeter to check in and know what symptoms/feelings mean for me. I've also found slow, calm stretching while laying down to help, especially the stretch for sciatica.

I was able to make my POTS so much better with walking. I had to start with very small amounts (and I had someone walk with me in the beginning), but I was able to build up and eventually stop taking all my medicines. At first, I was barely able to stand without my heart rate jumping to over 200. Now I’m walking 3-4 miles at a time with a much lower HR. My POTS does get worse when I am sick, so I will dial back the walking and take more break days, but the best thing you can do with POTS is keep moving. Rest makes my symptoms much worse. I hope you find some relief from your symptoms and please don’t give up!!

Following. I'm wondering the same thing, although I've never had COVID and the worsening has been gradual

I’m with you. After I got Covid my Dysautonomia got way worse. I’m in the process for getting tested for POTS.

Get registered with your college’s disability center, find a work-from-home job online, look into getting a temporary handicap placard for your car, and most importantly remember that it’s ok to have bad days! The bad days only make the good ones that much better :)