Struggling with POTS Symptoms

I'm going to ask questions, but nothing I say implies you aren't doing enough. How much water are you consuming a day? You can get fluids from watery fruits like watermelon and cucumber as well if plain water is too much. Here's a helpful link, https://www.healthline.com/nutrition/19-hydrating-foods Are you balancing fluids with salt and other electrolytes? We need more sodium to help increase our blood volume. Oral rehydrating solutions, drip drop, liquid iv, banana bag are popular ones. Also, salt all your food. Movement is key to keep your blood circulating. I reconditioned by doing chores. I was only going from the bed to the couch at my worst. My doc told me I had to move. So, I started by loading the dishwasher - slowly. Then I would rest. I gradually added in things as I could. My aunt would set a timer for once an hour and would walk around her house, which worked for her. You can even find in bed exercises on youtube if gravity is really giving you a hard time. Don't feel bad if your recovery/mgmt looks different. Just keep those 3 things in mind. Fluids, electrolytes/salt, and movement. Also, if it is any consolation, the astronauts that spend time on the space station come home with POTS. So, don't think of having it as a failure, some of our bravest people end up with it. Sending so much love.

This is exactly where I am today. I didn't even do anything different it's just a bad pots day and I cannot.

No offense to doctors, but our condition is not that well known, and honestly many of them don’t even know what it is. Try taking magnesium pills and probiotics if you aren’t already. Supplements can help, but finding the right amount for you is a challenge. Throughout your life, your POTS symptoms will fluctuate, for example I was bed bound for 6 months at 18 and semi thriving at 20.

It doesnt take much. I overdid laundry 3 days ago. Sciatica the next morning and still. Super sore almost everywhere thos morning. My imitrex blocks most pain, but its evening and all my back muscles are trying to outdo my sciatica. Such fun. I learned my lesson. I will do less.

I would talk to your doctor about it. There are medicines that can supplement what you're already doing at home. My doctor told me that POTS often gets worse in the summer cause you're sweating at an amount you don't in the colder months so you're losing more water