Managing POTS with Co-occurring Illnesses

And do not add extra salt with Hyperpots unless blood pressure is low at that moment.

I wish I knew. I'm worried I'll never find effective treatment. The whole water-salt-compression thing has absolutely no effect on me. Beta blockers take down my heart rate a little but don't help symptoms. Midodrine stops working when I take it long term. I'm dealing with symptoms in my entire body because of this damn illness and I can't work anymore and couldn't go back to school, and I also have to deal with endometriosis. I guess I don't have any advice, but you're not alone.

POTS and Sinus Tachycardia took over my life. I'm doing much better now that my doctor put me on Nitroglycerin capsules daily. It's not gone, but it's better. I Also try to stay on a low inflammation diet plan.

I found a way for me to "work", but it's limiting. This sounds really bad, but POTS is one of my least restrictive illnesses, despite having moderate to severe symptoms from POTS. I have over 20 diagnoses, so I stopped keeping track of things the normal way. Instead, I look at things as cause and effect chains. So, if I eat something against my NCGS, then my neuropathy will flare, my inflammation will increase, and my POTS will be all wack because of the inflammation and blood flow. Whereas, if I walk too much, my joints will sublux more, my legs will give out, I'll cramp, my osteoporosis will cause bone pain, and my POTS will be extra sensitive to heat and movement. I have to lay down at that point, usually with a cool wash cloth. My biggest success with POTS was finding research about treatments. Research says 2-2.5L of water/fluid a day MINIMUM and 3,000-10,000mg of salt (sodium) per day. (Ask your doctor first please). This has helped me tremendously.

Il really sorry! I was doing better with my pots symptoms but getting sick really set me back.

I don't know if some people can manage it. The Dr's consider it managed but mine is by far managed. Taking propranolol drinking liquid iv and 128 oz of water a day helps. Im on disability I worked in my own company for years but not anymore.

I don’t manage it. I currently don’t work but I’m a full time Masters student. I’ve been in bed mostly the past 8-9 days. I think I’m now reacting to a food that was one of 3 safe foods I had left. I hate it.