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Heggs

573d

I was recently diagnosed with POTS after covid and am still going through tests and appointments, etc. I am having trouble accepting these limitations I have are long term.

Top reply
    • Officialishness

      572d

      I’m sorry that you have to begin the journey - POTS is difficult however don’t be discouraged! For most people symptoms improve overtime with treatments and lifestyle changes (even if they may never go away completely.) as more research is done on POTS the hope is that treatments become better and more successful. Keep fighting and seek information on treatments and lifestyle changes that may help - you got this 💕 🙌

    • Officialishness

      572d

      I’m sorry that you have to begin the journey - POTS is difficult however don’t be discouraged! For most people symptoms improve overtime with treatments and lifestyle changes (even if they may never go away completely.) as more research is done on POTS the hope is that treatments become better and more successful. Keep fighting and seek information on treatments and lifestyle changes that may help - you got this 💕 🙌

    • 55isMe

      572d

      You are welcome. And I agree that a single day with this junk is a day too long!!! I hope yours (and mine) are gone tomorrow. Just dont let it get you too upset, if it isn't. Celebrate each little improvement. All studies have supported the benefit of a positive attitude. I have been through dysautonomia before. Last time it lasted 3 years. It was different and the migraines lasted the whole 30 years in between. Yet, as soon as this started, i KNEW it was the same. More POTS this time than just INAPPROPRIATE TACHYCARDIA, but enough the same that both my husband and i recognized the similarities. Both precursors to another breast cancer, but both times, the illness helped find the cancer early; so, another bright side. Look for the rainbows.

    • 55isMe

      573d

      I am relatively new to POTS (3.5 years so far). I have read quite a bit, but only a small fraction of what's out there. Bottom line, there is very little known about POTS. There is no reason to expect that your POTS will last forever. Even the diagnosis of POTS is simply the existence of numerous symptoms for at least a minimum span of time. I get a kick when a new medical professional asks if i have been "DIAGNOSED" with POTS. After 2 years, i was finally offered a Tilt Table test. By this point, i already had a heart loop recorder implant that proves the high heart rate when standing. Just over 200bpm when i stand was my max, typical was 145 to 175bpm. But by this point my body had mainly stopped dropping the oxygen% and so it wasnt leading to near fainting anymore. Anyway, i could speed another $3000 to have this test which wont help anything but give a diagnosis title. Sorry, sidetracked, bottom line, POTS starts with little reason and it fades or morphs too. I think that as they learn more about viruses, they will find that most things that they currently categorize as autoimmune are really still viruses. Covid infected so many people that the new sheer volume of patients will help solve this puzzle for the all of us. Watch new studies, but most importantly, help yourself by doing what you can, when you can. It will help emotionally and it will help physically like climbing out of a canyon, little by little. Accept improvement as improvement, and accept a setback as inevitable, but temporary until the next improvement.

      • Heggs

        573d

        @55isMe ❤️ thank you. Mine all started in June. The doctors keep saying long term and I thought this was long term enough. Now that I read about people having it for years I have a better idea of what long term means.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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