Stories
Privacy
Download
See Alike in...
Alike App
Browser
741d
I have been having issues that line up with an autoimmune disorder for months. I have had multiple specialists tell me to get tested for autoimmune disorders. My doctor just did blood work last week for a few that we think I might have. He did warn me that because I’ve only had symptoms for a couple months and because I am only 17, that even if I do have one of them that we tested for it might not show up. Just got all my test results back and everything is “normal”. So now we get to do further testing, if that’s all normal then we just play the waiting game and hope that when we test next time I get some answers. Even though I knew this was a possibility, I am devastated. You’d think that everything coming up normal would be good but, this just means I have to deal with even more testing, more draining doctors appointments, more pain, and feeling like shit 24/7, more people not taking me seriously because it’s undiagnosed, etc etc. I know getting diagnosed is a long process, but I was hoping that maybe something would finally go my way and that a diagnosis would give me some form of closure or reassurance. So now we’re back to square one. Now I’m stuck wondering how many more times I have to miss school, work, important events, and more, just because I am so mentally and physically drained from whatever is going on. Did/Does anyone else have this issue? How did you cope with it? Did you also have moments where you thought you were just overreacting and maybe nothing was actually wrong?
0
2
Share
Diffuse connective tissue disease
Autoimmune disease, not elsewhere classified
Generalized pain
advertisement
725d
I am 51 and have dealt with the same thing . I developed autoimmune disease when I was 34. So it’s been 17 years . And despite being older I have dealt with people not believing me , doctors dragging their heels , useless testing , inconclusive results and misdiagnosis. Not to sound too much like a mom , but keep your chin up . Try to not let it define you . It’s hard when you feel like shit all the time . I’ve missed so many events . I worked in a really demanding industry for 25 years and eventually had to downgrade to a less challenging job . As far as the doctors are concerned , be your own advocate. Ask lots of questions. It’s super frustrating and I’m so sorry that you’re going through this at such a young age . I would be devastated too . It sucks . It really sucks . I’m always happy to chat if you want advice or whatever .
1
I tend to believe if someone can't physically see your disability,they don't believe you...even doctors! 🙏
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions