Dealing with Suspected Autoimmune Disease

I'm going through the exact same thing. My inflammatory tests have been extremely high, autoimmune medication helps me quite a bit but other tests aren't conclusive so doctors don't know exactly what's wrong with me. I have loads of symptoms affecting every system in my body. It's frustrating.

My blood tests have me at seronegative, but I finally found a great rheumatologist wh wasn’t playing. He went with my symptoms and started me on RA meds right away. Thank God he did cause I couldn’t live one more day with all the pain I was having! My advice is to be persistent and don’t stop putting pressure on your doctors to get you relief. They need to spend the time with you to figure out what is going on!!

Autoimmune disease is a rough one to diagnose. To be able to get conclusive results you have to actively be in an autoimmune flare up and on top of that there's more than 80 known types that they may need testing for as well as some autoimmune diseases being orphan conditions. It sucks, but persistence is the key.

Same... Autoimmune suspected (I do have a possibly separate, severe autoimmune disorder of the esophagus) but inconclusive tests other than really high inflammation markers and slightly elevated ANA. I was thankfully put on hydroxychloroquine anyway and it's been helpful in reducing both the severity of my pain and how often/how badly I flare up. Maybe we're on the right track? More tests coming up but it's very frustrating not knowing exactly what's going on.

There is a big possibility it is autoimmune. Think of it this way, there are about 600 different autoimmune diseases of the thyroid alone. But modern medicine only has tests to identify 3. I ended up getting diagnosed with EDS and then it snowballed from there.

They always suspected an autoimmune disorder for my symptoms but none of them came back inconclusive. They refused to send me to rheumatology so I never got an answer

I might have to get autoimmune test for fibromyalgia at some point in my life.

Same I recommend rheumatology. Depends on symptoms but could be a nerve disorder, fibromyalgia, or something else. Prayers