See Alike in...

Alike App

Browser

BumbleBees

777d

Any advice on getting diagnosed?? I think I have an autoimmune disease like MS, I also need to get diagnosed with hyperthyroidism, anemia, and figure out why my joints are constantly inflamed! I have evidence of all of these and even doctors suspect it but I still have no diagnoses for them

Top reply
    • E11iefant

      776d

      I think I may have MS as well! I have every early symptom, I’ve gotten an MRI and it was clean. I had mono 3 years ago, I was sick for 5 months and ended up missing 6 weeks of school. Most of those days I had to crawl to get anywhere, but since I’ve had mono I have never felt like my normal self again. I have some other chronic illnesses that I’ve collected over the last year. Celiac disease, POTS, endometriosis, peripheral neuropathy, and more. Today I have strong tingling in my hands and feet, my vision is blurry, (insert all other MS symptoms here). I have been seeing neurologists and they told me that I can’t get a spinal tap/lumbar puncture done unless they have reasonable evidence (like lesions on an MRI) because it’s a risky and expensive test. This led me to contact a family friend with MS. Her name is Vicki and her story is crazy. She started noticing symptoms about 12 years ago and talked to her doctor about it, they gave her an MRI and it was clean. Her symptoms accelerated quickly and she was put on a high dose of OxyContin and Norco(both opioids) to manage her pain. At some point she completely lost feeling in her left arm and her symptoms were continuing to worsen. She got another MRI and had some tiny lesions, so she ended up getting a spinal tap that led to her diagnosis (this was 8 years after first symptoms showed up). Her doctor then recommended that she stop taking her pain meds altogether, which you’re never supposed to do with a high dose of opioids. This led to her going to the ER and nearly dying, she was hallucinating and her organs were starting to shut down. They gave her Naltrexone (a drug that can take away withdrawal symptoms) and that’s what ultimately saved her. She was asked to do a drug trial for a new drug with an interesting purpose. Low Dose Naltrexone (LDN). Within 6 months of her starting it, she had feeling in her left arm again and was able to walk around without being in pain. Today she’s in full remission and living in an RV with her husband as they travel all over the country. Out of curiosity I started taking LDN, I’m 25 days in and I’ve already noticed a huge shift in my energy level. Instead of sleeping for 20 hours a day I’ve been sleeping for 10 and taking only one nap per day. I got my LDN from agelessrx.com, it’s $35 per month and you can get a prescription directly from the website! You just fill out a form and they’ll prescribe it to you for any reason. Is this a miracle drug? Maybe!

    • E11iefant

      776d

      I think I may have MS as well! I have every early symptom, I’ve gotten an MRI and it was clean. I had mono 3 years ago, I was sick for 5 months and ended up missing 6 weeks of school. Most of those days I had to crawl to get anywhere, but since I’ve had mono I have never felt like my normal self again. I have some other chronic illnesses that I’ve collected over the last year. Celiac disease, POTS, endometriosis, peripheral neuropathy, and more. Today I have strong tingling in my hands and feet, my vision is blurry, (insert all other MS symptoms here). I have been seeing neurologists and they told me that I can’t get a spinal tap/lumbar puncture done unless they have reasonable evidence (like lesions on an MRI) because it’s a risky and expensive test. This led me to contact a family friend with MS. Her name is Vicki and her story is crazy. She started noticing symptoms about 12 years ago and talked to her doctor about it, they gave her an MRI and it was clean. Her symptoms accelerated quickly and she was put on a high dose of OxyContin and Norco(both opioids) to manage her pain. At some point she completely lost feeling in her left arm and her symptoms were continuing to worsen. She got another MRI and had some tiny lesions, so she ended up getting a spinal tap that led to her diagnosis (this was 8 years after first symptoms showed up). Her doctor then recommended that she stop taking her pain meds altogether, which you’re never supposed to do with a high dose of opioids. This led to her going to the ER and nearly dying, she was hallucinating and her organs were starting to shut down. They gave her Naltrexone (a drug that can take away withdrawal symptoms) and that’s what ultimately saved her. She was asked to do a drug trial for a new drug with an interesting purpose. Low Dose Naltrexone (LDN). Within 6 months of her starting it, she had feeling in her left arm again and was able to walk around without being in pain. Today she’s in full remission and living in an RV with her husband as they travel all over the country. Out of curiosity I started taking LDN, I’m 25 days in and I’ve already noticed a huge shift in my energy level. Instead of sleeping for 20 hours a day I’ve been sleeping for 10 and taking only one nap per day. I got my LDN from agelessrx.com, it’s $35 per month and you can get a prescription directly from the website! You just fill out a form and they’ll prescribe it to you for any reason. Is this a miracle drug? Maybe!

    • LisaD

      777d

      I had to go to a rheumatologist to get definitive answers! Get a referral!

    • lora53

      777d

      I have been thinking the same thing for awhile that I may have symptoms of MS

    • SammyNova

      777d

      Your primary doctor should be able to diagnose conditions. It sounds like you need blood tests done. Don't be afraid to fire your doctor and try someone different if you need to.

    • Sickcinattus

      777d

      Go get tested at a doc is your best bet

    • JustRachelle

      777d

      Hey bumblebees, I suspect it myself because I have all of the symptoms as well. Have discussed testing with any of your doctors?

      • BumbleBees

        776d

        @JustRachelle I’ve tried with old ones! I’m seeing a new one next month and I’ve got my fingers crossed 🤞

    • ives

      777d

      i have no advice on getting a diagnosis as i am still in search of one. but i was wondering what your symptoms are.? i feel as tho my chronic pain and symptoms are related or a autoimmune disease but i have not gotten any answers

      • BumbleBees

        777d

        @ives I’ve done some research on MS and I believe that’s the think I most likely have. I hit the mark on almost of the common signs and symptoms. I had mono when I was a child and studies have shown that it causes autoimmune diseases later in life. I would do some research on different autoimmune diseases and see if you can figure out anything !! I say that because they can sometimes mimic each other, for instance I am unsure if I have RA or MS, or both. I have signs of both and some symptoms coincide with one another. I have a TON of symptoms, from pain in my joints, back pain, motor function issues, trouble speaking, to even trouble swallowing. (Those are just some signs of MS) I’m doing plenty of research to try and help myself and doctors figure out what’s going on 🖤

        • ives

          777d

          @BumbleBees i’ve done a good bit of research can’t tell if i have MS,RA, or Fibro. those are just the few that i relate to the most

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion