Hi all. I have EDS and have a large number of Tarlov cysts on my spine. They cause a lot of pain but so far I’ve found no potential treatments. Anybody have these? (I also have cysts in most of my organs, including my brain, if that’s relevant.)Thanks in advance for any help!
Ehlers-Danlos Syndrome (EDS)
Hi, I am familiar with the problem from a family member I take care of. He suffers a lot from these cysts. I'm not sure what you tried but I'll tell you what worked for us. Initially, we would drain these cysts, but they often came back and only temporarily helped the pain. After that we tried steroid injections which also did not provide a very effective solution until we combined them together with strong painkillers, that's how we managed to get good control over the pain. Have you tried these things?
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
Scan code or click below download the app