Desperate for EDS Symptom Management Advice

Other thing, good shoes. They keep everything in alignment which helps with back issues

Idk if a good chiro would help you though. I use rolled up towels to stretch the parts of my back and shoulders that get tight and start to pull things wrong. I also found that a good desk and chair with proper ergonomics really helps along with a good mouse. Did the supplements help with the fatigue? I haven't really tried them yet. Sometimes it's stupid little things like having a proper sharp knife so that cutting veggies is easier, or taking smaller loads of laundry down the stairs. I'm getting a bite guard for my TMJ, I'll update when that happens, if it works. What excersizes do you do? I struggle to get the energy to get up and do anything so advice in that area would be helpful to me.

Well is sounds like you have tried a lot of different things. If you are still taking Cyclobenzaprine, ask if it actually helps because it's not a pain med it's a muscle relaxant, which can make your joints looser. I didn't see braces on the list, so I'd recommend getting flexible sports braces like the ones bauerfeind sells for your worst joints. I find chiropractic helps but only if you have a skilled chiro who uses low impact techniques, which is key.

I read the whole thing and that sounds very relatable! I have hypermobile EDS. I don’t know if you do pilates as part of your exercise regime but I recommend it as strength training helps stabilize your joints and has personally helped me. I’m still trying to figure it too so sorry I don’t have much advice. Best wishes ❤️