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Hey! I've just recently been diagnosed with Ehlers Danlos but I've been struggling for years. I feel like my doctor gave up on me. Is there anything out there that helps the pain or subluxations?
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Generalized pain
Ehlers-Danlos Syndrome (EDS)
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706d
Finally found a specialist who knows how to treat EDS. Special bracing for all my joints to help reduce the sublexing hopefully next week now that X-rays and MRIs show the problems.
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Physical therapy has helped a lot.
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@Ashleyej008 I've been doing it for years. It just seems like a crappy band aid really 😔
@Gingerbunny26 I am so sorry to hear that. Well I hope you are to find some answers here. 😞
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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