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Seeking advice for EDS treatment

Emcee

773d

Hi, I also have EDS. What kind of doctors do you see that treat it? What treatments have you tried?

0

3

3

Ketamine

Ehlers-Danlos Syndrome (EDS)

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Top reply
    • Kelsi

      770d

      @Beetlele get the cane! It helps so much! It was definitely an adjustment, but having it when I need it has really given me some control again!

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    • Kelsi

      770d

      Hi! I have vEDS/POTS. My regular doctors include my pain specialist, cardiologist, and neurologist. As far as treatments, I’ve done it all, as far as I know. PT, oral meds, IV meds, surgeries, infusions, therapy, mobility aids, injections, creams, the works. I’m currently discussing getting a port and doing home infusions and am probably having an ICD/pacemaker placed soon as well. How about you?

      1

      Reply
    • Beetlele

      773d

      I get treated at a pain clinic, I’ve tried ketamine infusions, physical therapy, medication, braces, and trigger point injections. So far it seems like bracing unstable joints and trigger point injections have helped the most, I’m also looking into getting a cane.

      2

      Reply
      • Kelsi

        770d

        @Beetlele get the cane! It helps so much! It was definitely an adjustment, but having it when I need it has really given me some control again!

        1

        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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