Feeling Alone with Lupus: Seeking Support

I understand you, completely. I just graduated from high school this year and recently started at college but during my senior year I cuaght Covid and I suddenly starting having that sick feeling and the sensation that I had zero energy. I remembered missing classes and events because of it or peers questioning my symptoms when they heard my dry cough. The symptoms and pains was something I grew to handle but the worst part for me was no one understanding or knowing what Lupus is or how it can affect someone but not show any physical signs. This is the first time, reading your post I felt like I understood someone.

I’m so sorry! I don’t know if any help groups. I was diagnosed older than you, but at 24 I still felt like I was dealing with symptoms no one else my age was or understood. It’s been 8 years and I doing much better! I was on meds for many years and after changing my diet as well I rarely have flairs now. I know that’s not everyone’s experience but I hope you’re able to get some relief with time. It’s so hard to explain our symptoms to people but they are real and debilitating for sure. Be well 💛