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Soap_On_A_Rope

881d

Hello! I’m the only one in my family with SLE so I don’t have anyone who understands what I’m going through. I was diagnosed approximately one year ago.

Top reply
    • Elsie

      866d

      I was diagnosed 15 years ago. I have found that no matter if people believe you or don’t believe you, you have to advocate for yourself and your healthcare. No one knows how you feel but yourself and this is a fickle disease and no two people are alike. I still struggle trying to take it easy when I need to and I still get my feelings hurt when people don’t believe me when I say I don’t feel good. I am basically a shy person and having this disease has helped me learn to stand up for myself.

    • Elsie

      866d

      I was diagnosed 15 years ago. I have found that no matter if people believe you or don’t believe you, you have to advocate for yourself and your healthcare. No one knows how you feel but yourself and this is a fickle disease and no two people are alike. I still struggle trying to take it easy when I need to and I still get my feelings hurt when people don’t believe me when I say I don’t feel good. I am basically a shy person and having this disease has helped me learn to stand up for myself.

    • Misotherat

      874d

      Hi! I got diagnosed 4 years ago

    • Soap_On_A_Rope

      877d

      @just_tired I don’t have any specific questions, just wanting to connect with people who can relate

    • Livingloopie

      881d

      Hi I’ve had it diagnosed since 2012 happy to talk if you need/ want

    • karinad

      881d

      Hey, I have SLE but my mom has another autoimmune disorder

    • Just_Tired

      881d

      Hey I’ve had it for a few years now what would you like to know

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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