Hello, I’m Anna. I take Topomax which has saved my life after struggling with POTS forever. I only got diagnosed four years ago. I was passing out at work and so dizzy all the time with severe migraines, nausea, tachycardia and weird temperature changes and all that. With the medicine, I don’t have episodes. With my stress or any infection, I get episodes. Maybe this helps someone. It makes you lose weight though. I just had a brain scan though and I have chiari malformation and now my headaches are back. I’m getting hopeless again. I don’t understand why I have such weird issues. Does anyone know how to deal with the head and neck pain?
Chronic Nausea and Vomiting
Postural Orthostatic Tachycardia Syndrome (POTS)
Yes!! I’ve had those symptoms since I was 12 but just now got diagnosed. I actually used to take Topomax, but I have no memory around the dates I took it. I didn’t know it could help with POTS!
I found a good PT and that helps with my head and neck pain. The graston/scraping technique is also super helpful. I use heat too
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