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Piya

128d

Hi everyone, I am 31 years old and got diagnosed with POTS last month. I dont know how and when I developed this but I remember during my first pregnancy, I had syncope. Other than that my pregnancy was very healthy and no other symptoms. Then my second pregnancy in 2020, again I had one syncope and rest everything was normal. I never felt anything unusual. I got covid in December, 2021 and I suddenly felt as if something is happening to my heart and I am about to faint so I rushed to ER. I was told its panic attack as my vitals were normal. I kept ignoring it and travelled to India for my brother's wedding and I got so sick with there, I had diarrhoea for two months and lost 8 kilos. I literally stayed in bed as I felt so weak. My ECG, ECHO were all normal. Then I developed daily headaches in last year July. No doctor was listening to me here so I travelled again to India to see specialists. They did a Tilt table test and POTS was diagnosed. I am now on a medication for headache as my neurologist thinks its migraines. I am just so heartbroken. I was absolutely normal and working mum. I have developed this fear of socialising now. I am scared to go to work. I do not enjoy my kids. Can I ask whats life like for you guys? Are you able to work? Do you go on holidays? Is there any chance this condition will ever go away? Please help!!

Top reply
    • Bellea606

      125d

      @Piya I just had a kind of adverse reaction so I had to be taken off of it. But I was on verapamil! I used to be on topiramatw and amitryptaline as well. I found amitryptaline was making my tachy worse unfortunately, the topiramate was a complete no go for me as well. It's a lot of trial and error, and I'm still trying meds. But I do have a comfort zone and you'll find yours too ❤️

    • Bellea606

      126d

      Feel free to message me about anything!

    • Bellea606

      126d

      Hi love! I have both migraines and pots as well as some other auto-immune diseases. Life does become "normal" again! It's really hard at first to get through figuring everything out. I am a full time manager in retail, and I travel a LOT. You'll just have to adjust to the symptoms you experience. Extra water salt. Meds. Etc. You got this mama! Life does become so enjoyable and so liveable again I promise! I'm 8 months since diagnosis. 8 months of research and trying new meds, I still haven't figured out all my meds but I'm mostly in homeostasis from my at home treatments. You have absolutely got this!

      • Piya

        126d

        @Bellea606 Hey love!! Thank you so much for this message!! I am so glad that you are enjoying your life❤️touchwood!! Can I ask what meds are you on? I am not on any meds for POTS but I have been getting daily headaches since last year and it has changed my life so much. My neurologist from India has put me on Topiramate and Amitryptaline. I am shocked that this medicatio n is not making much difference. What type of headaches do you get? Is it once in a while? With POTS, how do you manage to work full time? I am so scared to go back to work. I feel like my career is finished. 😥

        • Bellea606

          125d

          @Piya I just had a kind of adverse reaction so I had to be taken off of it. But I was on verapamil! I used to be on topiramatw and amitryptaline as well. I found amitryptaline was making my tachy worse unfortunately, the topiramate was a complete no go for me as well. It's a lot of trial and error, and I'm still trying meds. But I do have a comfort zone and you'll find yours too ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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