Struggling to Survive with Fibromyalgia

Literally exhausted all the time. Just push through it. Having a chat with my Dr on Thursday. Hoping to get some more help then. 🫶

I love you all thank you 💕

I completely get where you are coming from, I feel like I am just existing instead of living. I can only work part time because of this terrible illness so if am not in work am in bed 😥 😥. Hope you find something that helps 🙏🏻🙏🏻xx

I get it. I've been in survival mode for 11 yrs. At least mostly, there have been a few years here and there where I'm not. I've done it for my granddaughter who I have custody of. I've just done what I have to to make it through.

Spite. For a long time, I lived out of pure spite. If the world wanted me gone, it was going to have to do its own dirty work.

Elizabeth Taylor said : "You just do it, you force yourself to get up. You force yourself to put one foot in front of the other, and you refuse to let it get to you. You fight, you cry, you curse. Then you go about the business of living. That's how I've done it, there is no other way.". I set it as my screensaver for months so it was the first thing I saw when I got up. Reading it every morning after a when I had it memorized and my brain was triggered to think it was soon as I woke up. Kind of a reprograming message for the brain I guess. I signed up to this app because I was tired of feeling alone. If.you ever need someone to just talk to message me and I will give you my number. I may not be able to take the physical pain from you all to help but I can offer an understanding ear.

Jesus is literally the only thing that gets me through it. He's my only weapon against depression and giving up that I've got.

Because people like you are amazing thats why you live your life ❤️ I know it sucks being in so much pain, nothing helps at all. Pain meds are pointless. Sometimes one position helps one minute, next time it's killing you. But you keep going because someone needs you to. You will find an outlet that helps, maybe yoga, maybe scented candles and a massage. And then you can tell your story to someone who needs to hear what helped so they can try it. But I promise you're not alone in this. ❤️

I understand that so well, for the first couple of years after being diagnosed with (FM) I spent most of my time in bed, lights off and making playlists that helped me get through the day. Music really helped me get through the last couple of years.

I have been there. Years of constant PTSD triggers and not knowing what was going on. I will say this. Retreat. Go do something in a dark room that brings you some peace. Color. Draw. This is what I do and I feel it helps.

💕 completely get you, how I'm feeling rn 😶‍🌫️ unfortunately don't have much advise, just had a bath which has somewhat helped 🛀

I'm so sorry