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770d

I'm tired today.. I'm tired every day but today I'm especially tired of having fibromyalgia. There are so many symptoms and while I've had extensive lab work done, the thought of "what if they're missing something?" always creeps into my head. I'm tired of not being seen as chronically I'll because I don't "look it." I'm tired of being down and waiting for the ups in life. I know it's coming, but I'm tired of waiting. And I'm tired because my wonderful kids and husband expect so much of me, I expect so much of myself but I overextend myself and burn myself out. I push the "why me?" thoughts away because they really don't serve any purpose for me. But today I'm thinking, I wish I didn't have fibromyalgia, I wish my body was functional. I wish I didn't have to worry about any of this.

Top reply
    • Gracie1217

      770d

      Oh, friend. I hear you. We're in a really, really unfair and difficult spot. I've been feeling ashamed that I don't have a full-time job because my fibro won't allow it, and this week I thought, "I *do* have a full-time job: managing invisible chronic illness." It's awful and unfair that it doesn't come with benefits and isn't really sustainable in our current culture. Please know I'm thinking about you. 💕

    • AwesomeRed

      769d

      I've had fibromyalgia for a long time though before it was even diagnosed. About 10 yrs. Test after test with exhaustion and always pain.. only for a dr to look at you and say everythings normal when you feel like crap.I know how u feel. I'm sorry for your pain cuz no one ever says sorry for mine. I just had a surgery 2 weeks ago on my neck which adds to the pain. I know u just wanna feel normal and not be stiff every morning or hurt and stiff if u sit down too long. Regular pain is a 20 and sometimes the pain makes u depressed and always,always so tired. Prayer helps me alot.i get tired Fibromyalgia too! I Hope u find what helps you!

    • JustRachelle

      770d

      You took the words right out of my mouth. 😣 I completely understand you it’s just so exhausting.. message me anytime.. I can definitely relate to having fibromyalgia plus the family. 💕

    • 30Years_Of_This

      770d

      I’ve had fibro for over thirty years and now dysautonomia which has really gotten me down with increased symptoms from that. I just take it one day at a time but it’s easier now that I’m a retired widow and have no one else I have to take care of.

    • Gracie1217

      770d

      Oh, friend. I hear you. We're in a really, really unfair and difficult spot. I've been feeling ashamed that I don't have a full-time job because my fibro won't allow it, and this week I thought, "I *do* have a full-time job: managing invisible chronic illness." It's awful and unfair that it doesn't come with benefits and isn't really sustainable in our current culture. Please know I'm thinking about you. 💕

    • Chesbro99

      770d

      I get you. I wish I could do everything I wanted to.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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