Going gluten-free for POTS and hEDS

Also have you looked into the Cusack Protocol? I just started it a couple of weeks ago but already with all the probiotics I can start to feel a difference. Fingers crossed my symptoms will continue to improve 🤞

My Dr just had me go on an antiinflammatory mediterrean diet as well as gluten free. So I am minimizing sugars and eliminating white flours including gluten free white flours and processed foods. We will see how it goes, ill let you know if I see a difference. Also I have been gluten free for 15 years so if you have questions let me know.

Hello 🤗 yes going gluten free helped me massively. It doesn't have to be expensive if you stick to the naturally gluten free foods such as oats, potatoes, rice etc. There's a lot out there xxx

Yes! It’s extremely effective. I have found it’s saving me money cause I’m not buying a bunch of snack foods anymore. The trick is to not buy GF replacements of everything. Eat foods that are naturally GF, like meats, nuts, seeds, fruits, and veggies.

yes I actually have mcas too and developed an allergy to gluten, which started with stomach pain & GI symptoms and progressed to other reactions such as my throat swelling. (Didn’t realize it was gluten causing this until this and I had eaten a very glutinous meal). I started feeling better almost instantly & feel worse when I eat gluten. Bc mine is more of an allergy I’m not sure this is helpful but when I started I only did a trial and ended up feeling better… you could attempt it for a period of 2-4 weeks and gradually add it back in to see if you were feeling better without it. GF is VERY expensive so I feel you, but I definitely recommend buying GF flour and cooking for yourself, it’s easy to make that swap & not as expensive.