Nicholas

333d

hello,I'm currently going through so much testing to see if I have celiac or something else. however,I was told to start eating gluten free since they're are pretty sure it is celiac disease.
so....I need tips and help. in my years struggling with my helath, gluten being an issue never crossed my mind but seems obvious the more I look back.

Celiac Disease

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  • 3x3

    333d

    I'm curious what kind of testing they're having you do - I was explicitly told not to eat GF until after they did an endoscopy so they could confirm

    • Nicholas

      333d

      I've had an endoscopy and they're looking for blood test to I guess.....really confirm celiac. Doctor' s NP told me because of the endoscopy results and talking about symptoms

      • 3x3

        333d

        OH! That makes sense. My doctor never had me go through with a blood test, but I was fairly young and don't remember why. Sorry if that seemed accusatory - I was worried you'd have a false negative endoscopy Gluten is a weird one. There's gluten in some of the most random things (soy sauce always frustrates me... because it's only some brands!). I try to form my diet around naturally gluten free foods like rice instead of substituting - that's a great way to be cost effective if that's a concern. Many foods you can find gluten free versions! Others... You just miss for a bit. I miss donuts, but I miss how sick I was much less. Feel free to message me if you need any advice. I've been gluten free for a couple under a decade, and it stops being so hard after a while because you do it automatically

  • EddieKnee

    332d

    Been eating 100% gluten-free for 4 years now. I started by finding a few basic things that I would normally eat, but gluten-free! Finding a comfortable flour brand helps a ton too! I don't recommend any nut-based flour substitutes, but anything white rice/potato/tapioca works a wonder! Xantgum gum will give it that gluteny rise of breads and things, but switching to more veggie and rice heavy meals have been a lifesaver!

    • Nicholas

      331d

      thankfully I already really like rice! I have my favorite mircowave sticky white rice since I don't always have the energy to cook

      • EddieKnee

        331d

        That's great!! Rice has been a lifesaver

  • Kay2002

    327d

    I've been eating gluten free for about 3ish years now since I've been diagnosed. I have a love-hate relationship with the diet 😂 But the biggest tip I can give you from personal experience is once you go gluten free, make sure you're still eating enough calories and protein. You can definitely lose some weight from the diet, and I accidentally lost way too much weight at the beginning of my journey.

    • Kay2002

      327d

      Also, gluten digestion supplements are a must to keep with you, in case if you ate something that got contaminated.

  • Irelan

    327d

    Been eating gluten free and dairy free since I was nine. Definitely eat some good amounts of meat or starch because gluten free isn't all that supplying. I use brands like schar, daiya, and udis but if you would like some other tips then feel free to dm me. My celiac is going to be for my whole life, and my sister was before me so I normally ate gluten free. I can give you recipes and other things if you like. Oh, and welcome to the club my friend.

  • LadyLynn

    298d

    I believe if you are getting the blood test it’s best to not go gluten free just yet, unless the endoscopy was very clear. Just so you don’t get a false negative.

  • Babsmd

    278d

    I was diagnosed with celiac in 1985 by endoscopy. For years there were few gluten free options and they were very expensive. Now the gluten free market has exploded and I don’t feel like I’m missing much at all.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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