What is it?

Fibrodysplasia ossificans progressiva is a disorder in which muscle tissue and connective tissue such as tendons and ligaments are gradually replaced by bone. In addition, bone is formed outside the skeleton (extra-skeletal or heterotopic bone) and thereby limits movement.

1 Alikes with Myositis ossificans progressiva

Learn from others
who are experiencing
Myositis ossificans progressiva.

Signs & symptoms

Fibrodysplasia ossificans progressiva manifests first in early childhood affecting neck and shoulders, and then proceeding down the body and to the limbs. Also, the disease may involve the mouth, causing a difficulty in opening the mouth. Over the time, people may experience malnutrition due to their eating problems.


Your doctor will ask you about your symptoms and then conduct a physical exam where he or she may palpate your hurtful joints to try and feel a bony lump. Then they may use imaging scans such as CT, MRI, Ultrasound, or an X-ray. A biopsy, taking a small regimen from the tissue, may also be a part of diagnosis.


Treatment for Fibrodysplasia ossificans progressiva may vary from conservative treatment such as ice compressors, rest, and stretching, to medical treatment with nonsteroidal anti-inflammatory drugs (NSAIDs), and in severe cases even surgery

☝️ This is not a substitute for professional medical advice. Please consult with your physician before making any medical decision.

Learn more about our editorial process for content accuracy.

Alike Wisdom

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Thank you! Your submission has been received!

Find people who are
experiencing a similar
medical reality

100% Free