I was recently diagnosed with lichen sclerosus. since it is a rare disease I've had a hard time finding other patients to connect with. As a non-binary trans person, having a rare and chronic condition affect my genitals is especially distressing and I'm looking for anyone who shares that experience.
I have lichen sclerosis and I have been told there is no cure. It seems to be getting worse. I have also read that this is a rare disease and I would love to meet others that could share their story
does anyone else here struggle with large quantities of keloid scars? if so, how have you managed them? (dealt with pain/soreness/itching/etc, or lessened them/got rid of them)
does anyone have dry skin treatments that don't involve lotions or oils? i have severe sensory issues with those but alas, my skin still itches and flakes during these dry, northern winters. i usually just let myself suffer until the nice, humid spring months but since i just got this app i figured it wouldn't hurt to get some other folks' input.
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)