From what I’ve read it’s not uncommon. It’s an autoimmune disorder. See a dermo or ob/gyn for help.

I have had it for about seven or eight years. I was very frustrated that my doctor didn’t diagnose me. She’s down there every six months and didn’t say anything about the change in my skin color. I’ve diagnosed myself.

I tried the steroids once and I had a bit of a reaction to it and my Klitorius quadrupled in size

So I have struggled with figuring out how to live with it

There are many lichen sclerosus pages on Facebook

Try Tacrolimis rather than a steroid? Steroids set me on fire and make me worse

Just know that there are more then one type of steroid cream if one doesn’t work for you. I also had better luck with a dermatologist then a gynecologist. I’ve seen many gynecologist but none of them knew as much as the dermatologist.

I commented on this 8 months ago, just following up again. Definitely went through hell from then till now with trying so many different things. I recently went into remission after using Betamethasone. Remission is possible, for me there’s now no evidence of disease. Keep your head up you’ve got this!!