Dealing with Occipital Neuralgia: Seeking Advice

Hi I'm new here, I was diagnosed with Occipital Neuralgia last year but have been suffering for over 20 years prior to a diagnoses. I've been seeing a chiropractor for years and that helps to an extent, and I'm on gabapentin which again helps a bit. But I'm still suffering, I've had steroid injections a few times as well, sometimes helped sometimes didn't. Bit hit and miss. Wondering if anyone with the same issue benefits from massage and is there a specialist massage you'd need to have, I obviously don't want it to get any worse. Also how on earth do you sleep with it, I never have a good sleep? Thanks to anyone that replies.

Dealing with Occipital Neuralgia Pain

How have you been dealing with occipital neuralgia pain? I’m at a loss.

Chronic Headaches for 3 Years: Seeking Advice

Hello! New here! My story started about 3 years ago and I’m still trying to figure out the root of the problem! I’ve been getting headaches for the last 3 years on and off not really knowing why or where their coming from but just recently in the last 6 months I’ve been having right sided headaches. More like nerve pain sometimes throbbing. I’ve gone to my primary and a neurologist had a Catscan done of my sinus/ head everything came back normal. Went to neurologist he just wanted to give me meds. I tried a couple and didn’t like the way they made me feel. Tried Botox helped some. Went to chiropractor he suggested an mri of my neck. Results came back bone spurs, two buldged discs and arthritis in my c5-7 discs. Went to Florida march 1 had bone spurs Shaved and buldged trimmed. I was hoping this would fix the headaches!!!! Nope. Because I’ve had bad posture for so many years I also have some lordosis of my cervical spine. I’m not heard yet from my surgery so I can’t start physical therapy yet. I know the pain is coming from my neck and radiating up to the right side of my temple and above my eye but why????? Anyone else experience this?

Debilitating Neck Pain and Occipital Headaches

Does anyone happen to have Neck Tongue Syndrome? I know it’s super rare, but I have the exact symptoms of it and have been having debilitating neck pain and occipital headaches for almost a year now. When i turn my neck too quickly, i get an electric shock down my back, up my head, down my arms, and into my tongue that paralyzes it one one side for a little bit. I have always called it “whiplash” but that is definitely not what it is. I have EDS, so my ligaments are super stretchy and weak and i have read that that can contribute. I am just curious because I had never heard of Neck Tongue Syndrome until today and it is spot on with what I am dealing with.

Recovery from Occipital Nerve Decompression Surgery

I have occipital neuralgia and I had occipital nerve decompression surgery a year and a half ago. Has anyone else had this surgery? How long did it take you to recover and do you do/take anything else to help? I just had botox done because I heard it can help.

Looking for Chronic Migraine Relief

Hi there. I’ve been diagnosed with occipital neuralgia and chronic migraine. I had some occipital nerve decompression surgeries/ procedures done in 2020, which helped. And I am working on my hormones to help with menstrual migraines. Has anyone found relief elsewhere? I am going to try botox again. My nerves reacted badly last time, but that was a while ago. Acupuncture didn’t help.