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Water_Melon

592d

How have you been dealing with occipital neuralgia pain? I’m at a loss.

Top reply
    • Macks

      238d

      @Fudgey25 Oh sorry, I just saw this! It’s a website. The information takes a long time to enter, but they save your progress so you don’t have to do it all at once. https://www.stuffthatworks.health/occipital-neuralgia

    • Fudgey25

      410d

      Is the stuff that works a website or app?

      • Macks

        238d

        @Fudgey25 Oh sorry, I just saw this! It’s a website. The information takes a long time to enter, but they save your progress so you don’t have to do it all at once. https://www.stuffthatworks.health/occipital-neuralgia

    • Macks

      592d

      What finally helped me was a combination of nortriptyline and bupivacaine nerve block injections. There are different types of nerve block injections, which I hadn’t known until I worked with a headache specialist (neurologist sub-specialty) instead of a pain specialist. I’m so sorry you’re dealing with this!

      • TNA

        240d

        @Macks from what I've read if the do the thr nerve block and it eases the pain, they can actually perform a surgery to loosen the tight muscles

        • Macks

          238d

          @TNA For some people that can help, yes! Apparently there are some situations (like mine) where that surgery wouldn’t help, but it’s great that it’s sometimes an option! I think it depends on what’s causing it, and what type of block ends up helping; I know they said for me that because the steroids made it worse, the surgery definitely wouldn’t help.

      • Water_Melon

        592d

        @Macks thank you so much for your response! Its been really frustrating for the past year.

        • Macks

          592d

          @Water_Melon I also definitely recommend joining the occipital neuralgia Stuff That Works page. The intake is pretty in-depth, but that’s also what makes it a really useful website — because everyone has provided that much information. https://stuff.health/s/4pAYqRvP

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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